Please join us for a collaborative Hangout On Air with Autism Brainstorm (http://goo.gl/HO5LZL). We will be discussing current research in Autism and Autism Education, as well as the protein biomarkers associated with Autism Spectrum Disorders.
Topics:
1) Lead by Dr. +Stephen Shore:
Research in Comparative Approaches to Autism Education with special emphasis on the Miller Method®. Dr. Shore will be joined by Ethan Miller and Amir Naimov for discussion and Q&A.
2) Lead by +John Elder Robison:
Current research topic(s) being considered by IACC (The Interagency Autism Coordinating Committee is a Federal advisory committee charged with coordinating all activities concerning autism spectrum disorder within the U.S.
3) Lead by Dr. +Alisa Woods:
Protein Biomarkers and Autism Spectrum Disorders
PDF LINKS:
Dr. Stephen Shore Dissertation: Comparative Approaches to Autism Education: http://goo.gl/lnqpxb
Dr. Stephen Shore: ICDL The Miller Method: http://goo.gl/X6XQoq
John Elder Robison: Scholar in Residence at William And Mary: http://goo.gl/QPxtLH
John Elder Robison: IACC Government Strategic Plan for Autism Research: http://goo.gl/reBc9a
Dr. Alisa G Woods: Treating Clients with AS and ASD: http://goo.gl/175424
Dr. Alisa G Woods: Proteomics and Cholesterol in Autism: http://goo.gl/SklhcL
Dr. Stephen Shore:
Diagnosed with “Atypical Development and strong autistic tendencies” and “too sick” for outpatient treatment Dr. Shore was recommended for institutionalization. Nonverbal until four, and with much support from his parents, teachers, wife, and others, Stephen is now a professor at Adelphi University where his research focuses on matching best practice to the needs of people with autism.
In addition to working with children and talking about life on the autism spectrum, Stephen presents and consults internationally on adult issues pertinent to education, relationships, employment, advocacy, and disclosure as discussed in his books Beyond the Wall: Personal Experiences with Autism and Asperger Syndrome, Ask and Tell: Self-advocacy and Disclosure for People on the Autism Spectrum, the critically acclaimed Understanding Autism for Dummies., and the newly released DVD Living along the Autism Spectrum: What it means to have Autism or Asperger Syndrome.
President emeritus of the Asperger’s Association of New England and former board member of the Autism Society, Dr. Shore serves in the Asperger Syndrome and High Functioning Autism Association, United States Autism and Asperger Association, and other autism related organizations.
Dr. Shore is on the advisory board of AUTISM BRAINSTORM and is the primary autism education advisor. He frequently participates in Google Hangout events hosted by AUTISM BRAINSTORM.
education.adelphi.edu/profile/steven-shore
John Elder Robison:
Self Advocate, Parent and Author, Mr. John Elder Robison joined the IACC as a public member in 2012. Mr. Robison is an Aspergian who grew up in the 1960s before the Asperger diagnosis came into common use. At age sixteen, Mr. Robison left high school to join his first band as a sound engineer. Within a few years he was building equipment for Pink Floyd’s sound company, touring the hockey rinks of Canada with April Wine, and creating the signature special effects guitars for the rock band, KISS. John went on to design sound effects and other circuits for some of the most popular electronic games and toys of the era before moving into more conventional engineering management. In the late 1980s, John left electronics for a new career – cars. His company, J E Robison Service, grew to be one of the largest independent restoration and service specialists for BMW, Bentley, Jaguar, Land Rover, Mercedes, and Rolls Royce cars. John has served as a panel member for the Institute for Autism Research, the Centers for Disease Control and Prevention (CDC), the National Institutes of Health (NIH), and Autism Speaks. Mr. Robison is involved in TMS (transcranial magnetic stimulation) autism research at Harvard Medical School and Beth Israel Deaconess Medical Center, and serves on the advisory board for Mass General Hospital’s YouthCare program. Mr. Robison speaks publicly about his experience as a person on the autism spectrum, and is the author of popular books about living life with autism, Look Me in the Eye, My Life with Asperger’s, Be Different: Adventures of a Free-Range Aspergian and Raising Cubby.
John is on the advisory board for AUTISM BRAINSTORM and participates, along with his wife Maripat, in monthly Hangouts where he shares his advocacy activities in the autism community. John and Maripat teach workshops together on autism and the family.
John Elder Robison will serve as scholar in residence at William and Mary University: http://goo.gl/HizD1d
Wikipedia entry for John Elder Robison: http://goo.gl/bQuKP
John Elder Robison Curriculum Vitae: http://goo.gl/jFcyXq
Dr. Alisa G Woods:
Dr. Alisa Woods focuses on the field of psychobiochemistry, specifically searching for biomarkers for neurodevelopmental disorders. Biomarkers are greatly needed for diagnosis, treatment monitoring and for the general understand of autism and associated disorders. Her current research projects include investigation of the neuroanatomical localization of tumor-derived factor (TDF), as well as the study of putative biomarkers for autism spectrum disorder. She received her BS in psychology from SUNY Plattsburgh, PhD in biology from the University of California Irvine, post-doctoral training in neuroanatomy at the University of Freiburg, Germany, and Master’s degree in Mental Health Counseling at the University of Massachusetts, Boston.
Dr. Woods is on the advisory board for AUTISM BRAINSTORM and does a monthly Hangout called: Ask the Neurobiologist
Dr. Woods and her research group are conducting a crowdfunding project. http://www.rockethub.com/projects/36715-protein-biomarkers-for-autism-spectrum-disorder
Dr. Woods discusses Biomarkers for ASD on public radio: http://goo.gl/Du0pqA
http://www.clarkson.edu/biosci_chemistry/faculty_pages/alisa.html
http://www.researchgate.net/profile/Alisa_Woods/publications
https://www.facebook.com/darie.lab.16
events/ci104asmck07b8fffqai73rcrrk//cdn.embedly.com/widgets/platform.js
This is great! I was about to send this to my cousin when I see Dr. Woods is on the panel!
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I just wanted to state that the topics for Monday evening’s hangout will be:
~Comparative Approaches to autism ed (emphasis on MM®)
~IACC Research (per John Elder Robison’sdirection)
~Protein Biomarkers and Autism
For coherence, we at Autism Brainstorm, are requesting that comments and questions regarding THIS particular hangout remain focused on the above. We will certainly look at having future hangouts on any other topic of interest re: autism.
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Chris Robinson Is this gonna be an On-Air session?
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Yes, Shang Heng Wei. I should probably make that explicit. Thanks!
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Does seem interesting
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Maryann Martone anita bandrowski Is this an event you’re interested in?
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Here’s the link to Alisa Woods’ crowdfunding project.
http://www.rockethub.com/projects/36715-protein-biomarkers-for-autism-spectrum-disorder
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How do I unsubscribe from these invitations if I eventually choose to do so?
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Will there be any discussion about the use of eye gaze technologies to help with earlier diagnosis?
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Mike Stay – the easiest thing to do is (a) not comment on the event post and (b) indicate that you are not attending the event. If that is not enough, send us a PM and we will remove you from the notification circle.
Jessie King and Lisa Hogan Autry – We haven’t seen any of the presentations. If eye tracking studies and discussion of the C677T and A1298C variants come up, it will be in John Elder Robison and Alisa Woods’ talks, respectively.
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It’s 10:10 Eastern. Is there a hot link to the event somewhere?
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FYI, Dr. Alisa Woods’ talk is “not a general discussion of autism biomarkers or risk factors”.
She will be specifically talking about the research that she is doing with Costel Darie on proteomic biomarkers and ASD.
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I hope it really DID say 10 AM when I first read the invitation!
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🙂 Busy schedules all around, 10 PM Eastern
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We’re live in 5 minutes
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Links:
http://www.autismbrainstorm.org
And their G+ community: https://plus.google.com/communities/115926519223088457160
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See also this great post by Rajini Rao on how autism is more common in males than in females: https://plus.google.com/u/0/+RajiniRao/posts/Zqmm7R7kX6M
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Thanks, Liz! Great discussion so far. While there is some diagnosis bias towards males because symptoms may present differently, that is not the only explanation for the gender difference in autism.
As Mr. Robison just explained, there is some evidence for a “female protective effect” that means a higher threshold of burden needs to be crossed in females, compared to males. I hope to delve into this more in future posts!
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It’s particularly inspiring to see that some of the speakers and researchers are themselves autists.
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Question for Dr. Woods: Are similar biomarker proteomics being done on other disorders comorbid with ASD such as intellectual disability, seizures or ADHD? Curious whether there are some common candidates. Thanks.
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Would “cholesterol disregulation” happen to present as “bad” cholesterol that is almost too low to measure? (Which I’ve heard from 3 different doctors over the years, so I’m curious.)
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Very informative discussion. Thanks everyone.
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This Hangout was really interesting. It covered diverse fields from methods to social issues to biology. I enjoyed hearing about the inclusion of “neuro-diverse students” within research and education into autism. Thanks to all the speakers and our Mods!
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For a fantastic and thoughtful summary of this Hangout, see Zuleyka Zevallos ‘s post to our science community here: https://plus.google.com/u/0/+ZuleykaZevallos/posts/C2Mw2T1FhMe
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